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I may be gone for a bit...........

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I may be gone for a bit...........

Post by bumblebee on Wed Dec 01, 2010 6:53 am

hey guys. just thought i post something here. Al already knows though facebook as well as anyone who has me on facebook. Yesterday my 9 year old daughter was diagnosed with Wilm's tumors on both kidneys.

http://kidshealth.org/parent/medical/kidney/wilms.html


the doc says if we caught it in time its curable. needless to say her mom myself and her biological dad are fearful. thanks for any well wishes that can be spared.

i will update this as much as i can and be around when i can.....


till next update...

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Re: I may be gone for a bit...........

Post by Cliffjumper on Wed Dec 01, 2010 8:20 am

woah man sorry to hear I 'll keep her in my prayers

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Re: I may be gone for a bit...........

Post by Nemesis Prime on Wed Dec 01, 2010 4:29 pm

I am sorry to hear that. Hope the best for you all.

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Re: I may be gone for a bit...........

Post by Galvatron on Wed Dec 01, 2010 5:01 pm

Ben, your family will be in my thoughts and prayers.
I hope this blows over quickly. But issues like this is never a walk in the park. Hang in there and be strong. This sounds like it could be easily curable from what I have read in the link.
You got my phone number if you ever need to talk.

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Re: I may be gone for a bit...........

Post by Dirge on Wed Dec 01, 2010 6:24 pm

holy crap

hopefully she will be strong enough to beat it

youre in my thoughts ben

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Re: I may be gone for a bit...........

Post by Rumble on Wed Dec 01, 2010 7:13 pm

Sorry to hear that Ben, am thinking of you and your family and hoping for the best.

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Re: I may be gone for a bit...........

Post by Sixshot on Wed Dec 01, 2010 7:20 pm

I'll keep you in my prayers too bud. 2010 has been a rough year for my family as well...grandmother having a stroke, mother diagnosed with cancer and step-father was just told today that he only has 3-5 years to live unless they can find a liver donor because his is shot. Good luck and God bless you bud.

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Re: I may be gone for a bit...........

Post by bumblebee on Thu Dec 02, 2010 3:42 am

Thanks guys and i will keep everyone in my thoughts as well.

Update:
home tonight no new answers. got to see a surgeon and a kidney specialist in the morning. wont know anything till the biopsy. Arieal is tiered of being poke and prodded but is as cheerful as ever. She has to be one of
the most bravest people i know

They said it could be scar tissue but the chances are not high that that is true.


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Re: I may be gone for a bit...........

Post by Galvatron on Thu Dec 02, 2010 2:50 pm

hang in there bro, she's a trooper. keep strong for her and hopefully this obstical will be over soon

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Re: I may be gone for a bit...........

Post by Ramjet on Thu Dec 02, 2010 4:33 pm

Sorry to hear that. If there's anything I can do, LMK.

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Re: I may be gone for a bit...........

Post by bumblebee on Fri Dec 03, 2010 2:11 am

well we have some good news and some bad news....

1st. its not the cancer. the "tumors" are scar tissue. her kidneys are not fully formed.

the bad news is she in stage 2 kidney failure. that is bad yes but not as bad as the stage 5 cancer. she will need to change a lot of things and take new meds and be checked regularly. Doctors and tests will be a fact of life now. She will need a transplant and dialysis every so often though out her life but she still has up to 5 years before we reach that stage. Her family is big and im sure we will find donors though out the time.

I want to thank everyone for there good thoughts and wishes.

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Re: I may be gone for a bit...........

Post by Galvatron on Fri Dec 03, 2010 2:21 am

Well it sounds as if our prayers have been answered for now.
Thank God for that. I'm glad it's not cancer. But then again, I'm sorry she has such week kidneys. It's going to be a rough life for her.

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Re: I may be gone for a bit...........

Post by Nemesis Prime on Fri Dec 03, 2010 8:44 am

It's a relief to hear it's not cancer. I hope you can find a suitable donor for her. My best regards to you and your family, Ben. :)

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Re: I may be gone for a bit...........

Post by Dirge on Fri Dec 03, 2010 10:38 am

at least she has a fighting chance now ben ... its still not good but if shes as strong as you she will be fine :)

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Re: I may be gone for a bit...........

Post by bumblebee on Sat Dec 04, 2010 5:19 pm

Well the past few days have been rough. the dyes from the cat scan messed up her kidneys and sent a level of cretinn too hi and she almost had to be hospitalized. we drew blood wed, thur, fri, and sat. the level is slowly going down and she gets tomorrow off from the vampires.... she has to deal with them again mon. Tho now she not flinching nearly as much at the time of the blood drawing, tho her poor little arms are sore as hell.....

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Re: I may be gone for a bit...........

Post by Rumble on Sat Dec 04, 2010 7:52 pm

Now thats what I call a brave girl, am still thinking of you all and hope things go smoothly from here on.

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Re: I may be gone for a bit...........

Post by bumblebee on Sun Dec 05, 2010 1:00 am

thanks guys your well wishes mean a lot to the misses, family, and myself.

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Re: I may be gone for a bit...........

Post by Galvatron on Sun Dec 05, 2010 4:01 am

good friends stick together in times of trouble

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Re: I may be gone for a bit...........

Post by Unicron on Sun Dec 05, 2010 5:06 am

my prayers are with you Bee, I hope all turns well

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Re: I may be gone for a bit...........

Post by bumblebee on Wed Dec 15, 2010 3:35 pm

she had to get a Bladder reflux study. that is where they catheterize her. (that didnt go well she spazed out) then we went to the kidney doc. he told us her kidneys are functioning at about 25% of normal. dyialis starts around 10-15% so we still have a year or two before that happens. eventually we will have to give her 2 shoots (one to help blood production, another will be a growth hormone). that will start happening withing 6 months.

Good news is we are now drawing blood once a month. kidney ultrasound every 3 months.......

poor girl is having soooooooo much stress and anxiety. she has counseling next week.

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Re: I may be gone for a bit...........

Post by bumblebee on Wed Dec 15, 2010 3:43 pm

Double post but its needed.


Thanks for the ecard guys showed the misses and she says thank you too. You guys dont know how comforting it is to know that we all support each other as best we can.

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Re: I may be gone for a bit...........

Post by Galvatron on Wed Dec 15, 2010 3:46 pm

i wish there was something I can do.
We all would wish her troubles away but there is no damn Genie in a bottle.

It's going to be very harsh and stressful for her for a long time.
Then it will become just an average part of her life.

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You twist around in the air and assault the room with your unmentionable! - SOP
It's so weird around here Dora wont even explore it-RAVAGE
has anyone realized yet that SOP sounds an awful lot like SOB? - DETECTIVE BARRICADE

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Re: I may be gone for a bit...........

Post by Dirge on Wed Dec 15, 2010 6:30 pm

one true friend is worth a million false ones

its when times are hard that you find out who your true friends are

i think i speak for all the lair members when i say that youre one of our true friends :)

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Re: I may be gone for a bit...........

Post by Nemesis Prime on Wed Dec 15, 2010 9:06 pm

Couldn't have said it better myself Dirge.

If you need to talk you know we are here Bee. Sometimes talking with someone who is at a distance can do a lot of good. I talk out of experience :)

Hope she will soon be better. My best wishes to her, you and the rest of your family

Hugs, Karen

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Re: I may be gone for a bit...........

Post by Dirge on Thu Dec 16, 2010 12:06 am

OOOOOIIIIIIII BUGBOT ....

THATS MY HUGGING SPOT

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Re: I may be gone for a bit...........

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